What we do!
We work to raise awareness, expand access to quality health care, and nurture holistic character development for every child impacted by genetic disease
Driven by Compassion. Guided by Science. Inspired by Hope.
We believe that children and families affected by Inherited Genetic Diseases (IGDs) deserve to live productive, fulfilling lives — regardless of where they are born. We work to raise awareness, expand access to quality health care, and nurture holistic character development for every child impacted by genetic disease.
Founded in 2022, The Jason Initiative (TJI) is a non-profit organization born out of a deep conviction that no child should be left behind because of a condition they inherited.
We are committed to ensuring that children with Inherited Genetic Diseases — and the families who love them — can live meaningful, empowered lives through education, advocacy, and care.
What Are IGDs?
Understanding Inherited Genetic Diseases (IGDs)
Inherited Genetic Diseases (IGDs) are caused by changes (mutations) in a person’s DNA — the biological instructions that make us who we are. These mutations can pass from parent to child and may lead to various health conditions that affect physical, mental, or developmental well-being.
Common IGDs Include:
- Sickle Cell Disease – affects red blood cells, causing pain and fatigue
- Hemophilia – prevents normal blood clotting
- Cystic Fibrosis – causes lung and digestive system complications
- Down Syndrome – impacts development and learning
- Thalassemia – leads to low hemoglobin and anemia
These conditions can cause severe symptoms that limit children’s ability to live normal lives, especially in areas with limited medical resources.
Frequently Asked Questions
Our programs are designed for children living with Inherited Genetic Diseases and their families or caregivers, especially in low-income communities where access to specialized care is limited. We also collaborate with health professionals, educators, and community leaders to strengthen support networks.
There are several ways to make a difference! You can:
Volunteer your time or professional skills
Donate to support our programs and outreach
Partner with us as a health or community organization
Advocate by spreading awareness about IGDs in your community
Visit our “Get Involved” page to learn more and take action.
TJI provides education, advocacy, and support programs to improve the well-being of affected children and families. We conduct community awareness campaigns, help connect families to health care resources, offer counseling and mentorship, and advocate for better policies to ensure equitable access to diagnosis and treatment.
Inherited Genetic Diseases (IGDs) are health conditions caused by mutations or changes in genes that can be passed from parents to their children. These genetic changes can affect how the body functions and may lead to serious medical conditions such as Sickle Cell Disease, Thalassemia, Down Syndrome, Cystic Fibrosis, and Hemophilia.
The Jason Initiative (TJI) is a non-profit organization dedicated to improving the lives of children and families affected by Inherited Genetic Diseases (IGDs). We focus on awareness, education, advocacy, and access to quality health care, empowering families to live productive and fulfilling lives.
The Jason Initiative (TJI) is funded through donations, grants, and partnerships with individuals, organizations, the Jason’s family and institutions that share our vision. Every contribution helps us expand access to health care, support families, and create awareness about Inherited Genetic Diseases. We are committed to transparency and accountability in how every donation is used to impact lives.
Become a volunteer
Get involved
Together, we can create a future where every child — no matter their genetic condition — has a fair chance at life.
- Volunteer: Share your time and talents.
- Donate: Help us fund life-saving initiatives.
- Partner: Join hands with us as a medical, educational, or advocacy partner.